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pam@theupsofdowns.comPerfect
I wanted them to be perfect. When they were babies, I wanted them to smile and be content playing with their toys. I wanted them to be happy and to laugh continually instead of crying and being demanding. I wanted them to see the beautiful side of life. As they grew older, I wanted them to be giving instead of selfish. I wanted them to skip the terrible twos. I wanted them to stay innocent forever. As they became teen-agers, I wanted them to be obedient and not rebellious, mannerly and not mouthy. I wanted them to be full of love, gentle and kind-hearted. "Oh, God, give me a child like this" was often my prayer. One day He did. Some call him handicapped... I call him Perfect!! ~ author unknown ~
Two Words By Cheryl Ward
Your birth brought us closer Whispered so long ago Never did they prepare me For the person I now know
If you wish to copy this poem please email cheryl :wildward@aol.com
Heavens Very Special Child
A meeting was held far from earth Her progress may seem very slow She may not run, or laugh, or play So let's be careful where she's sent They will not realise right away And soon they'll know the privilege given
Childs Song by Spike Milligan
There is a song in man
I have a child with downs......
Did the tests come back right? it cant be true, I have a child with Downs, My futures dark, no longer bright, what will i do? I have a child with Downs.......... What will people say, what will people think i have a child with downs, The sun has gone away, life i knew down the sink, I have a child with downs......... How can this be , full of anger and despair, i have a child with downs, why on earth pick me, its just not fair, i have a child with downs.......... In your sleep you smile, in your play you giggle and grin, Today I stopped and took a while, to see the child within....... You crawled right across the room, shouting mama all the way, instantly lifted away the gloom, as you do each and every day......... The tests were true, they came back right, I know what to do, the futures bright, who cares what they say, who cares what they do, the suns come out to play, My wonderful, beautiful you........ Wow you picked me, to bring me your , our eyes open we clearly see, a joyous gif from above.... We''re all off out now, to play, laugh, run about town, as a family we take a bow, mum , dad, brother and our beautiful child with downs. Written by Lukes mum
Heavens blessing
The heaven shines upon your face. Showing your faults, your misfits. For this is what makes you as beautiful as you are. Everyday is a struggle. Fighting to hold your own. Each breath you take is a blessing. Each wink is worth a smile. I sit here and watch you. Watch you sleep, in your timeless crib. The crib that holds the key to your survival. The crib that shows all. You make a movement. You open your eyes. Looking around for a brief moment. Then fixing upon my face. I look back at you and smile. This face I look upon is a face of an angel. Fallen from heaven, into my arms. You are my special little angel. The one that was meant to be. I make my way to the court yard. Look upon the misty sky. A drop beats across my face, a rain drop. I feel the rain drip through my fingers, hitting the ground. The angels are crying. They've lost one of their own. A special little child. My special little child.
My Little Sis (Peter Higgins)
You will never be anything but my little sis, If you cant run or laugh, still every second apart I miss, I love you even more with every excited smile, But at first my feelings were bad, at least for a while. The words she had just spoken were going round in my head, ôThere is a serious problem with herö she mumbled in tears, A problem that would last for many years. My mother was silent and the feeling was of gloom, I was expecting to celebrate till we were all told, That my sister had 'downs', that idea quickly got old. As the understanding was, that this child WILL NOT LEARN! We were gutted at first; it was awkward to speak, As her chances of survival were possibly meek. Alas we now know, what's to offer from a child with downs syndrome, Dancing and singing seems enough to most, But with my little sister there is too much to boast. And her understanding in school may be low, But all that we hope is that others will care, And not laugh and call her but just, æbe thereÆ. That over time our feelings have changed, and she has still far to go, I now think of her as a gift from above, With her she brings incredible laughter and love. As two years ago I may have 'laughed' if Id met her, Now I feel furious with myself, For not seeing the child but their outer self. For changing my thoughtless attitude.
"Sometimes Miracles Hide" by Bruce Carroll
They were so excitedIt was coming to beTwo people so in loveNow soon there would be threeFor many years they'd planned itNow it would soon be trueShe was picking out the pink clothesHe was looking at the blue The call came unexpectedThe doctor had bad newsSome tests came back and things weren't rightHe said, "You're gonna have to chooseI'll wait a week for your decision"Then the words cut like a knife"I'm sure everyone will understandIf you want to end its life" Though they were badly shakenThey just had no choice'Cause they knew God creates no accidentsAnd they were sure they heard His voice, saying, Sometimes miracles hideAnd God will wrap some blessings in disguiseYou may have to wait this lifetimeTo see the reasons with your eyes'Cause sometimes miracles hide It seemed before they knew itThe appointed day arrivedWith eager apprehensionThey could barely hold insideThe first time they laid eyes on herConfirmed the doctor's fearsBut they held on to God's promises'Cause they were sure they both could hear That sometimes miracles hideAnd God will wrap some blessings in disguiseYou may have to wait this lifetimeTo see the reasons with your eyes'Cause sometimes miracles hide Though she was not like the other girlsThey thought she was the bestAnd through all the years of struggle
Lilian
Special People
When god created angels
He chose a special few
Whose qualities were love and care
For only these would do.
He watched you very carefully
He had to be so sure
For he knew these special people had loved and cared before
He stopped and watched you working
With what life had sent your way
He had a heavenly message
to you he had to say
Wasn't meant to be only parents
But chosen for something much more
Was meant to be his messangers of love for a new life he had in store.
Next he made a blessing you would treasure all your lives
The strength from one another
side by side as man and wife.
A baby sent very specially chosen carefully just for you
is blessed with special parents
Two people warm and true.
We will always love you all
By your sides we proudly stand
For what could be more precious
Than the life you hold in your hands.
With wonderous love
Mum and Dad
(Gwen and Terry Graven)
"My Own Special Angel" by Norma Henneke 1977
Katy
I was sitting quietly in my chair
Professor Jerome Lejeune, Nobel Prize Winner, Discoverer of the gene for Down syndrome
by Professor Jerome Lejeune "Many years ago, my father was a Jewish physician in Braunau, Austria. On a particular day, two babies had been delivered by one of his colleagues. One was a fine, healthy boy with a strong cry. His parents were extremely proud and happy. The other was a little girl, but her parents were extremely sad, for she was a mongoloid [Down syndrome] baby. I followed them both for almost fifty years. The girl grew up, living at home, and was finally destined to be the one who nursed her mother through a very long and lingering illness after a stroke. I do not remember her name. I do, however, remember the boy's name. He died in a bunker in Berlin. His name was Adolf Hitler."
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