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pam@theupsofdowns.com

Perfect
As my children were born,
I wanted them to be perfect.

When they were babies,
I wanted them to smile and be content playing with their toys.
I wanted them to be happy and to laugh continually
instead of crying and being demanding.
I wanted them to see the beautiful side of life.

As they grew older,
I wanted them to be giving instead of selfish.
I wanted them to skip the terrible twos.
I wanted them to stay innocent forever.

As they became teen-agers,
I wanted them to be obedient and not rebellious, mannerly and not mouthy.
I wanted them to be full of love, gentle and kind-hearted.
"Oh, God, give me a child like this" was often my prayer.
One day He did. Some call him handicapped... I call him Perfect!!

~ author unknown ~

Two Words By Cheryl Ward

Your birth brought us closer
As death lingered near
Your strength as you struggled
Gave flight to our fear


Down syndrome they whispered
Days after your birth
Two
words that portrayed
A false image of your worth


Those words did not tell us
Of the love you would bring
Or the power your smile has
To make our hearts sing


Down syndrome didn't tell us
What kind of child you would be
Filled with amazing surprises
Shared with your father and me


Hard work, determination,
teaching and learning, it's true
Down syndrome means much of this
For each of us, not just you


Wonder child, spirited child
You've grown and you've thrived
Your every achievement
Still fills us with pride


No matter the voice used
Two words can't describe
The fullness you've added
To so many lives


Down syndrome, those frightening words
Whispered so long ago
Never did they prepare me
For the person I now know

 

If you wish to copy this poem please email cheryl :wildward@aol.com

Heavens Very Special Child

A meeting was held far from earth
'It's time again for another birth'
said the angel to the Lord above
'This special child will need much love'.

Her progress may seem very slow
Accomplishments she may not show
And she'll require extra care
from the folk she meets way down there.

She may not run, or laugh, or play
her thoughts might seem quite far away
In many ways she won't adapt
And she will be known as handicapped.

So let's be careful where she's sent
We want her life to be content
Please Lord find the people who
Will be special for you.

They will not realise right away
The leading role they're asked to play
But with this child sent from above
Comes stronger faith and richer love.

And soon they'll know the privilege given
in caring for this gift from heaven
Their precious charge, so meek, so mild
Is 'Heaven's Very Special Child'.

Childs Song by Spike Milligan

There is a song in man
There is a song in woman
And that is the childs song
When that song comes
There will be no words
Do not ask where they are
Just listen to the song-
Just listen to it -
It is the greatest song of all.

 

 

 

I have a child with downs......

Did the tests come back right? it cant be true, I have a child with Downs, My futures dark, no longer bright, what will i do? I have a child with Downs..........

What will people say, what will people think i have a child with downs, The sun has gone away, life i knew down the sink, I have a child with downs.........

How can this be , full of anger and despair, i have a child with downs, why on earth pick me, its just not fair, i have a child with downs..........

In your sleep you smile, in your play you giggle and grin, Today I stopped and took a while, to see the child within.......

You crawled right across the room, shouting mama all the way, instantly lifted away the gloom, as you do each and every day.........

The tests were true, they came back right, I know what to do, the futures bright, who cares what they say, who cares what they do, the suns come out to play, My wonderful, beautiful you........

Wow you picked me, to bring me your  , our eyes open we clearly see, a joyous gif from above....

We''re all off out now, to play, laugh, run about town, as a family we take a bow, mum , dad, brother  and our beautiful child with downs.

Written by Lukes mum
 

Heavens blessing

By Kirt Blackburn age 16 

The heaven shines upon your face.

Showing your faults, your misfits.

For this is what makes you as beautiful as you are.

Everyday is a struggle.

Fighting to hold your own.

Each breath you take is a blessing.

Each wink is worth a smile.

 

I sit here and watch you.

Watch you sleep, in your timeless crib.

The crib that holds the key to your survival.

The crib that shows all.

 

You make a movement.

You open your eyes.

Looking around for a brief moment.

Then fixing upon my face.

I look back at you and smile.

This face I look upon is a face of an angel.

Fallen from heaven, into my arms.

You are my special little angel.

The one that was meant to be.

 

I make my way to the court yard.

Look upon the misty sky.

A drop beats across my face, a rain drop.

I feel the rain drip through my fingers, hitting the ground.

The angels are crying.

They've lost one of their own.

A special little child.

My special little child.

My Little Sis (Peter Higgins)

You will never be anything but my little sis,

If you cant run or laugh, still every second apart I miss,

I love you even more with every excited smile,

But at first my feelings were bad, at least for a while.

As I walked towards my mum in her hospital bed,

The words she had just spoken were going round in my head,

˘There is a serious problem with her÷ she mumbled in tears,

A problem that would last for many years.

My understanding was low when I entered the room,

My mother was silent and the feeling was of gloom,

I was expecting to celebrate till we were all told,

That my sister had 'downs', that idea quickly got old.

There were tears being shed from all people in turn,

As the understanding was, that this child WILL NOT LEARN!

We were gutted at first; it was awkward to speak,

As her chances of survival were possibly meek.

At first we cried and people we know moaned,

Alas we now know, what's to offer from a child with downs syndrome,

Dancing and singing seems enough to most,

But with my little sister there is too much to boast.

She may never realise that sometimes she is slow,

And her understanding in school may be low,

But all that we hope is that others will care,

And not laugh and call her but just, Šbe thereĂ.

The meaning of my poem is for me to show,

That over time our feelings have changed, and she has still far to go,

I now think of her as a gift from above,

With her she brings incredible laughter and love.

She has changed my life all for the better,

As two years ago I may have 'laughed' if Id met her,

Now I feel furious with myself,

For not seeing the child but their outer self.

So to my Katy I owe a debt of gratitude,

For changing my thoughtless attitude.

Love you Kate x  

"Sometimes Miracles Hide" by Bruce Carroll
They were so excited
It was coming to be
Two people so in love
Now soon there would be three
For many years they'd planned it
Now it would soon be true
She was picking out the pink clothes
He was looking at the blue
 
The call came unexpected
The doctor had bad news
Some tests came back and things weren't right
He said, "You're gonna have to choose
I'll wait a week for your decision"
Then the words cut like a knife
"I'm sure everyone will understand
If you want to end its life"
 
Though they were badly shaken
They just had no choice
'Cause they knew God creates no accidents
And they were sure they heard His voice, saying,
 
Sometimes miracles hide
And God will wrap some blessings in disguise
You may have to wait this lifetime
To see the reasons with your eyes
'Cause sometimes miracles hide
 
It seemed before they knew it
The appointed day arrived
With eager apprehension
They could barely hold inside
The first time they laid eyes on her
Confirmed the doctor's fears
But they held on to God's promises
'Cause they were sure they both could hear
 
That sometimes miracles hide
And God will wrap some blessings in disguise
You may have to wait this lifetime
To see the reasons with your eyes
'Cause sometimes miracles hide
 
Though she was not like the other girls
They thought she was the best
And through all the years of struggle
Neither whispered one regret
On the day that she started school
And took her first bus ride
They remembered the words that God had spoken
And they both broke down and cried
 
You see to them it did not matter
Why some things in life take place
'Cause they just knew the joy they felt
When they look into her face
 
They learned sometimes miracles hide
They said, "God has wrapped our blessing in disguise
We may have to wait this lifetime to see the reasons with our eyes
But we know sometimes miracles hide
"We've learned sometimes miracles hide"

Lilian

áJohn Langdon Down and his wife Lilian had a daughter who died at age two, probably of meningitis.
Lilian wrote a beautiful poem about the loss of their daughter.

A little precious babe
Came to my heart one day
And folded there most lovingly
A long sweet time she lay

Her little fairy fingers
O'er my bosom softly crept
A faint thrill ever lingers
There where her pure cheek slept

Her eyes were dark and beautiful
As evening's starry sky
Her voice was clear and musical
As birds that sing on high

Like lilies gleamed her snowy skin
Like pale gold shone her hair
Like pearls her rosy lips within
Shone tiny teeth so fair

So fair, so pure my little gem
That angels came to see
And seeing bore her home with them
Their angel babe to be

And ever when cast down apart
In agony I weep
There thrills within my stricken heart
A thought that ne-er shall sleep

That cradled in an angel's arm
From every sorrow free
A little bright winged seraph child
Waits lovingly for me

á
Author: Lilian Langdon Down

From "John Langdon Down" by O'Connor Ward
published by Royal Society of Medicine Press Ltd
1 Wimpole Street, London W1M SAE,
England

Special People
 
When god created angels
He chose a special few
Whose qualities were love and care
For only these would do.
 
He watched you very carefully
He had to be so sure
For he knew these special people had loved and cared before
 
He stopped and watched you working
With what life had sent your way
He had a heavenly message
to you he had to say
 
Wasn't meant to be only parents
But chosen for something much more
Was meant to be his messangers of love for a new life he had in store.
 
Next he made a blessing you would treasure all your lives
The strength from one another
side by side as man and wife.
A baby sent very specially chosen carefully just for you
is blessed with special parents
Two people warm and true.
 
We will always love you all
By your sides we proudly stand
For what could be more precious
Than the life you hold in your hands.
 
With wonderous love
Mum and Dad
(Gwen and Terry Graven)

"My Own Special Angel" by Norma Henneke 1977

As we walk to your classroom my heart swells with pride

for the children all run to you to walk by your side.

They hug you and greet you; they all seem to know

just how much you need them and love them all so!

You march down the big hall with your most grownup stride

and turn and wave bravely, "Bye, Mommy!  Bye-bye!"

 

Such a big girl, my Misty!   You give life your best

though sometimes even the smallest thing can be a big test;

like struggling to run just as fast as the others

or trying your best just to straighten your covers;

things like coloring, swinging or brushing your hair.......

Sometimes Mommy feels that it just isn't fair!

 

Once late at night as I lay in my bed

I cried just to think what a little girl had said:

"Why's Misty so dumb?  Can't she talk?  Can't she run?"

I said, "Please be nice to her, please don't make fun.

See, God didn't make her as perfect as you

And I think he would want you to help her, don't you?"

She shook  her head slowly and gave a small smile.

She had understood perfectly and that made it worthwhile!

 

Yes, sometimes it hurts and I don't understand

How God could have done this as part of His Plan. 

Yet each time I hold you or we kiss goodnight, 

I know in my heart He did everything right! 

You're my own Special Angel, and how lucky I was 

To be chosen by God to receive your sweet love. 

 

My own Special Angel, sent straight from above!

Katy

I was sitting quietly in my chair
When all of a sudden
A beautiful sight to see
I spied a vision of loveliness
Peeping round at me.

My little granddaughter
aged nearly two
Had bounced into the room
And suddenly, the world was bright again
She'd banished the doom and gloom.

Her merry eyes were twinkling
As she danced and sang for me
She gave a bow and then a twirl
And her smile was full of glee.

My heart was full of love for her
As she gazed into my face
She looks as cute in denim
As she does in satin and lace.

I also have three grandsons
And I love them dearly too
So thank you God
For these lovely kids
And I send my love to you.

Professor Jerome Lejeune, Nobel Prize Winner, Discoverer of the gene for Down syndrome
Down Syndrome
by Professor Jerome Lejeune


"Many years ago, my father was a Jewish physician in Braunau, Austria. On a particular day, two babies had been delivered by one of his colleagues. One was a fine, healthy boy with a strong cry. His parents were extremely proud and happy. The other was a little girl, but her parents were extremely sad, for she was a mongoloid [Down syndrome] baby. I followed them both for almost fifty years. The girl grew up, living at home, and was finally destined to be the one who nursed her mother through a very long and lingering illness after a stroke. I do not remember her name. I do, however, remember the boy's name. He died in a bunker in Berlin. His name was Adolf Hitler."

Email Me...
If you have a poem or story you would like published please email me at:
pam@theupsofdowns.co.uk

 

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